Living with Scleroderma

Christina Current Fidalgo, Fay Maushard and Donna Stone joined us today to describe what it's like to live with Scleroderma and how people can help fund research for this disabling disease.

“Scleroderma, also known as systemic sclerosis, is a chronic, often progressive autoimmune disease in which the body’s autoimmune system attacks its own tissues. Four out of five people living with scleroderma are women—and they’re usually stricken in the prime of life,” Oregon Scleroderma Chapter President Liz Orem-Bedel said.

Local people living with this disease have turned to the Oregon Chapter of the Scleroderma Foundation for nearly 30 years in its continuing efforts to provide support groups throughout the state, sponsor educational seminars, and help fund research.

Oregon and SW Washington's largest annual scleroderma fundraising and awareness building event, the Stepping Out to Cure Scleroderma 2.8-Mile benefit walk, is ready rain or shine for Saturday, July 30, 2011 at The Multnomah Arts Center (7688 SW Capitol Hwy.) and Gabriel Park.

Set to begin at 11am, the 6th annual walk benefits the Oregon Chapter of the National Scleroderma Foundation in its efforts to raise awareness, support patients and fund research for this chronic autoimmune disease. Stepping Out to Cure Scleroderma will include food and family activities at The Multnomah Arts Center (the walk-a-thon’s start and finish) in addition to the 2-8 mile-walk (shorter loop also available) through lovely southwest side Gabriel Park. Awards will be given for individual and team categories.

Walk-a-thon participants 14 and older pay a registration of $20 ($25 day of walk) and are encouraged to recruit fund-raising sponsors to support their walk. A T-shirt will be given to every paid registrant after signing in at the event’s registration table, which opens at 10am. Call 503-245-4588 to request an advance registration form and pledge sheet, or simply register online here
 

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