Living with Scleroderma
Today on the show we found out about a life threatening disease that is Greek for "hard skin". We talked with a doctor and two patients about the commonly misdiagnosed disease of Scleroderma.
Gaye Moye Jacobs has been living with Scleroderma since 2005 and it progressed so rapidly that she was in a wheelchair only a year later. It has affected her lungs creating some scar tissue there. She shared with us her story and how she is staying positive.
Donna Stone, the Support Group leader of the Oregon Scleroderma Foundation was diagnosed in 1979, when scleroderma was nearly unheard of. She found a small group of Scleroderma patients putting together a support group in 1979 in Portland at Good Samaritan Hospital and has been involved ever since.
The Scleroderma Foundation is hosting a benefit walk. The 4th Annual Stepping Out to Cure Scleroderma Benefit Walk is scheduled for Sat., July 11, 2009 starting at The Multnomah Art Center (7688 SW Capitol Hwy.) and continuing through lovely Gabriel Park, Portland. The event will include entertainment, food, and family activities, in addition to the 2.8 mile-walk (shorter loop also available). On-site registration, check-in, and the Walk itself all begin at The Multnomah Art Center.
For more information call 503-245-4588 or click HERE.