Living with Scleroderma

Caroline Edwinson, Diane McAuley and Liz Orem-Bedel, President of the Oreogn Chapter of the Scleroderma Foundation  joined us today to describe what it's like to live with Scleroderma and how people can help fund research for this disabling disease.

“Scleroderma, also known as systemic sclerosis, is a chronic, often progressive autoimmune disease in which the body’s autoimmune system attacks its own tissues. Four out of five people living with scleroderma are women—and they’re usually stricken in the prime of life,” Oregon Scleroderma Chapter President Liz Orem-Bedel said.

Local people living with this disease have turned to the Oregon Chapter of the Scleroderma Foundation for nearly 30 years in its continuing efforts to provide support groups throughout the state, sponsor educational seminars, and help fund research.

The seventh edition of “Stepping Out to Cure Scleroderma” – the region's largest fund-raising and awareness-building event for people living with this rare autoimmune disease – is at an all-new location for this family-fun benefit walk.

Hosted by the Oregon Chapter of the Scleroderma Foundation, “Stepping Out to Cure Scleroderma” is scheduled for 10am at Happy Valley Elementary School and Park, 13865 SE King Road, Happy Valley, Oregon 97086. On-site registration ($25 for 14 years and up) for the 1.5 mile loop begins at 9am, though online pre-registration ($20) is encouraged.

Click here to sign up for the walk or for more information about Scleroderma or call 503-245-4588.

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