Living with Scleroderma

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease. The severity of the disease varies from patient-to-patient.

Today Lilliane Grahek, age 11, and Marie Fiorillo, along with Liz Orem-Bedel, President
Oregon Chapter of the Scleroderma Foundation, shared what it’s like to live with Scleroderma.

To find out more or to participate in the 8th annual "Stepping Out to Cure Scleroderma" benefit walk click here. The 1.5 mile fundraising walk is Saturday, July 13 at 10:00 am at Happy Valley Grade School. Registeration begins at 9:00 a.m.


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