Help us get a HEART

For those of you that may not know my families story here's a condensed version...... When my son was 5 in 1995 & we found out he had Aplastic Anemia & would have to have a BMT ( bone marrow transplant.) My other son was a perfect match so we were very blessed. We spent 5 months @ UCSF & 18 months on isolation @ home. We got through that and had a few good years. When we were at our very best& just bought our first & only house my husband got sick and went into CHF. (2006)While waiting for his SSD/SSI we lost everything.Trying to figure out what we were going to do my oldest son call from college says he's sick again (2009) so back to UCSF we go again. This time it is another really rare blood disorder called PNH... treatment BMT. So he spent his 18th b-day in the hospital going through another BMT.This time they used my son again for donor but he had a rough time with lots of complications. We spent another 5 months there @ UCSF & 20 months in isolation at home. He got stable & got back to school then 4 months back @ school he got sick again & back to UCSF for drug theapy (2010-2011)to treat Aplastc AGAIN. This time it was a stay of 8 months with lots of complications but he finally got stable enough to go home on isolation. This ENTIRE time my husband was dealing with his Congestive Heart Failure & was send for heart transplant evaluation but he got stable as well. Till now.... 2012 he went to see his heart doc & they said never seen a heart that big lets get you to OHSU ASAP... that was in March when they put him on the transplant list hoping he could make it long enough to get to transplant but that DID NOT happen he had to undergo a (LVAD) heart pump surgery ( open heart ) just so he will live long enough to get to a transplant. He is recovering well but this is just the begining of a LONG, COSTLY process. So we thank all of those who have helped us & continue to help us get the word out about or journey!! PLEASE share this with everyone you know.... we need a miracle....
This is the direct link to our page TY to all those who have supported us & continue to do so http://www.gofundme.com/hqlyw

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